Protocol 2 – Day 15 (2nd day of DON)

Well, I don’t know what to think about my glucose; it’s a bit better but not consistently under 4.1 mmol. The only way to keep it consistent is to not eat, so that is what I did on Saturday. My glucose was just fine for most of the days last week. Saturday I fasted, and my glucose was good all day; Sunday it was great, so I decided to get back on DON and hit the HBOT chamber. And I am not going to worry anymore about how I keep my glucose low; Metformin, here I come, and damn it if I have to fast. I should worry about the Cancer first and emaciation later. Plus, it’s not like I am wasting away already; I am just trying to avoid it so that I don’t end up with two problems instead of one. Anyway, rather than worry, I will fast. So, I’m back to eating more like I was in September—no calories for the 36 hours before DON.

On Sunday, I took 1.1 mg/kg of DON, which ended up being 69 mg. I was expecting to be sick because a couple of weeks ago, on my last dose, I did 1.0 mg/kg and was nauseous, so I assumed that adding 0.1 mg/kg would push me over nauseous to pukey, but it didn’t. I was just nauseous for longer, and I think that is okay. Still effective, and next dose, I plan to take 1.1 mg/kg as well.

But before DON/HBOT, I had my CT scan!! I’m very excited to get the results, but it will be about two weeks before they let me see them. I’m going to email my nurse tonight to see if she can give me a verbal when she gets them; it’s not the same though—I like to see the reports myself. My Bone Scan results should be ready tomorrow at some point, or so the estimation says. But that isn’t as exciting because I don’t think they are measuring treatment efficacy off that. It really only shows the state of the bones (new lesions or not), but not the size of the solid tumour in my breast or future metastasis to other organs visible in the bone scan.

Breast Cancer metastasis tends to stick to a collection of sites—bones, lungs, liver, and brain, but the order can vary for people. I feel a bit lucky that it went to my bones rather than my organs. I mean not lucky like winning the lotto lucky, but if I had to choose where it would spread to, I would choose bones. Apparently, it doesn’t spread to all your bones; it sticks to the trunk and leaves your arms and legs alone. So, from a logical but medically untrained perspective, I think that at least some of my bones are in good shape and able to perform the vital roles they play in blood production, including my white blood cells needed to fight off Cancer and other random things I don’t want in my system. I only have one set of lungs, one liver, and one brain. So, if it spreads to those, I feel like the function those organs provide is more likely to be compromised. So thumbs up to having metastasis to the bones and not the organs. Sick humour but true.

Tomorrow I am heading up for straight HBOT; then, in a couple of days, I plan to hit DON again. I may even play with the every 4-day routine depending on how I feel.

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